BRCA1
An Inconvenience
Monday, November 17th, 2008 | Cancer Survivor | 1 Comment
Well, it’s been a long time since I’ve blogged. I looked back on my last entry and could not believe that my last entry was September. I realized that I really left everyone riding the crazy roller coaster. Not good. I’m sorry about that. I guess that it was just too raw to write that I found out that I have breast cancer, after being a seven year survivor of fallopian tube cancer, and am a BRCA 1 gene mutant. I think that being a Ninja turtle mutant would be better. At least then, I could wear a crazy costume and be a hero. But, I have to deal with the cards (or make that the genes) I was dealt. In a strange, weird way, finding out about the BRCA 1 gene mutation made me feel better. I always wondered what I did to get cancer (now two cancers). I wondered if it was where I lived or how I ate or drank. But, I’ve always had a healthy lifestyle, so that did not make sense. So, a small inside voice kept telling me that it was because I was a perfectionist and always had to do everything 150%. I thought it was because my closet was color coded and all my pantry items labeled. Of course, finding out about my bad genetic code, made me worry more for my son (and sibilings) who now has a 50/50 chance of being BRCA1 positive too and all the implications that it has for him. The counselors tell me that this genetic stuff can be very tricky. Parents feel guilty, siblings without it feel guilty. Insurance companies don’t want to cover you, which is now against the law—but you know how that goes.
I’m just glad to now have two needle biopsies, a needle location, and a lumpectomy behind me. We’re still waiting on a clear margin from the lumpectomy biopsy, so we can move forward to radiation and tamoxifen. I was disappointed that I didn’t get my anticipated Dixie cup during the needle location. During needle location, prior to surgery, they insert a long wire into the breast for the surgeon to follow when operating. This wire extends to the outside and is usually covered by a Dixie cup for protection until surgery. My wire was lying against my chest, so I didn’t need the Dixie cup. Gosh, too bad, I was sort of looking forward to the Madonna jokes! All things considered, the surgery was the easiest of the past five that I’ve had in seven years since my first diagnosis in 2001. As usual, I was awake as they rolled me into the operating room. It seems it takes a while for me to succumb to anesthesia. I was chatting with the nurses when the lights went out. I woke up, bright eyed and bushy-tailed, as my father would say, and started cracking jokes about my leg wraps (to prevent blood clots) that looked like the Michelin tire guy. That was it for the nurses. They said it was time to move me to the next level. See where a little sense of humor will get you—right out of the recovery room to the “Step Down” area. That’s where you get to see your family and drink ginger ale. Ah-h eureka!
So, we’re praying for a clear margin so we won’t have to travel another five hours to Charlotte, to do this all over again. I told my surgeon to be sure and get it all because I planned on doing Thanksgiving as usual with my family and to get my house ready for the Christmas tour on December 6th. She looked at me as if I were crazy. I replied to that by telling her that cancer is just an inconvenience. I like to think that is the case. It makes it easier to cope.